Rare New England’s Broad Role in Community & Policy

• Rare New England’s (RNE) broad role in community and policy
• Biomarker-testing from a patient/patient advocacy perspective: Describe the current status of biomarker testing coverage bills across New England and evaluate the impact of these policies on the rare disease community
• What can be done in the future: Explain the role that clinicians and other healthcare professionals can play in facilitating access to care for rare disease patients

Speakers:

Haley Director

Board of Directors, Policy

Rare New England

Tasia Rechisky

Board of Directory, Secretary, Policy Co-Lead, Rare Disease Patient & Advocate

Rare New England