Haley Director
Seminars
Thursday 8th October 2026
Rare New England’s Broad Role in Community & Policy
11:30 am
- Rare New England’s (RNE) broad role in community and policy
- Biomarker-testing from a patient/patient advocacy perspective: Describe the current status of biomarker testing coverage bills across New England and evaluate the impact of these policies on the rare disease community
- What can be done in the future: Explain the role that clinicians and other healthcare professionals can play in facilitating access to care for rare disease patients
