Haley Director
Board of Directors, Policy Rare New England
Dr. Haley Director is a member of the Board of Directors for Rare New England with a focus on policy. She recently completed her PhD in Health Services Research and Policy at the University of Pittsburgh School of Public Health, with her dissertation exploring the impact of policy on the prenatal genetics care delivery landscape. Dr. Director’s personal and professional research interests lie in the realm of genetic policy, in which policy levers are used to improve access to care and health outcomes. As a member of the Board of Directors for Rare New England, Dr. Director tracks and analyzes legislation across all six New England states that may affect the rare disease community, including bills that affect access to and insurance coverage for biomarker testing and whole genome sequencing for rare disease patients.
Seminars
- Rare New England’s (RNE) broad role in community and policy
- Biomarker-testing from a patient/patient advocacy perspective: Describe the current status of biomarker testing coverage bills across New England and evaluate the impact of these policies on the rare disease community
- What can be done in the future: Explain the role that clinicians and other healthcare professionals can play in facilitating access to care for rare disease patients
![Haley_Director[1]](https://world-cdx.com/wp-content/uploads/sites/138/2026/05/Haley_Director1-300x300.png "Haley_Director[1]")