Tasia Rechisky

Tasia Rechisky is a member of the Board of Directors for Rare New England. She is the secretary and Policy co-lead. As a patient advocate herself, she focuses primarily on patient programming and using the lessons of lived experience to connect to legislative decision-making and policy. She is a patient advocate with 10+ years experience, specifically in medical education and patient speaking. She has an MBA from Umass Lowell and a Bachelor of Arts and Bachelor of Science from Boston University. She has given over 20 talks to various groups, students of various backgrounds, biotech professionals, and other medical and health care professionals at various universities as well as conferences like INFORM, DPHARM, INFORMA and MassBio. In 2020, she was involved in the FDA processes to get her medication approved after 15+ years on a clinical trial that changed the trajectory of her health and life. She has also written and co-published several articles on specifically living with a fatty acid oxidation disorder (FAOD) and more broadly for publications like the Mighty and Mental Health America. She is a member of the Mitoaction planning board for the International Metabolic Conference and has spoken on the Expert series on topics such as grief and traveling with an FAOD.